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Background: This study evaluated the health-related quality of life (HR-QoL) in patients with sagittal synostosis (SS), and the influence of frequent headaches and surgical techniques on the HR-QoL.

Method: Patients with SS aged 8 to 18 years were invited to participate between June 2016 and February 2017. The Child Health Questionnaire was used to assess the HR-QoL. A detailed questionnaire was used to assess the severity of headache symptoms. The control group consisted of 353 school children aged 5 to 14 years.

Results: In all, 95 parents of patients with SS were invited to participate, of whom 68 (71.6%) parents completed the CHQ-PF50. The mean age of the participating patients was 12.4 years (10.8 to 14.2). The Psychosocial- and Physical summary of the patients with SS was similar to the general population. In the distinct CHQ scales, "Family cohesion" ( P =0.02) was higher, and "Mental health" ( P =0.05) was lower compared with the general population. The type and timing of surgery did not affect the HR-QoL. Thirty-two patients (47.1%) reported having headache complaints at least once a month. The CHQ scores of SS patients with frequent headaches had a significantly lower score of mild to large effect than those without headaches.

Conclusion: Patients with SS have a slightly lower to similar HR-QoL compared with the general population. In all, 47.1% of SS patients have frequent headaches, resulting in lower average HR-QoL. The type and timing of surgery did not affect the results. Clinicians should be aware of lower HR-QoL in some subgroups of patients with SS.

Competing Interests: The authors declare no conflicts of interest.

Titel:	Health-related Quality of Life in Children and Adolescents With Sagittal Synostosis.
Autor/in / Beteiligte Person:	Kurniawan, MSIC ; van de Beeten SDC ; Raat, H ; Mathijssen, IMJ ; Dirven, CMF ; van Veelen MC
Zeitschrift:	The Journal of craniofacial surgery, Jg. 34 (2023-11-01), Heft 8, S. 2284-2287
Veröffentlichung:	<2014-> : Hagerstown, MD : Lippincott Williams & Wilkins ; <i>Original Publication</i>: Burlington, Ont. : B.C. Decker, c1990-, 2023
Medientyp:	academicJournal
ISSN:	1536-3732 (electronic)
DOI:	10.1097/SCS.0000000000009733
Schlagwort:	Humans Child Adolescent Health Status Surveys and Questionnaires Headache Quality of Life Craniosynostoses surgery
Sonstiges:	Nachgewiesen in: MEDLINE Sprachen: English Publication Type: Journal Article Language: English [J Craniofac Surg] 2023 Nov-Dec 01; Vol. 34 (8), pp. 2284-2287. <i>Date of Electronic Publication: </i>2023 Sep 08. MeSH Terms: Quality of Life* ; Craniosynostoses* / surgery ; Humans ; Child ; Adolescent ; Health Status ; Surveys and Questionnaires ; Headache References: Mathijssen IMJ. Working Group Guideline C. Updated Guideline on Treatment and Management of Craniosynostosis. J Craniofac Surg 2021;32:371–450. ; van Veelen MC, Jippes M, Carolina JA, et al. Volume measurements on three-dimensional photogrammetry after extended strip versus total cranial remodeling for sagittal synostosis: A comparative cohort study. J Craniomaxillofac Surg 2016;44:1713–1718. ; Frostell A, Haghighi M, Bartek J Jr, et al. Improved cephalic index following early cranial vault remodeling in patients with isolated nonsyndromic sagittal synostosis. 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Health-related Quality of Life in Children and Adolescents With Sagittal Synostosis.