Measures of general pediatric quality of life: Child Health Questionnaire (CHQ), DISABKIDS Chronic Generic Measure (DCGM), KINDL-R, Pediatric Quality of Life Inventory (PedsQL) 4.0 Generic Core Scales, and Quality of My Life Questionnaire (QoML)

Purpose. To measure health-related quality of life (HRQOL) in children and adolescents ages 5–18 years. This measure consists of child report (ages 10–18 years) and 2 versions of parent-proxy report (ages 5–18 years) of the child’s HRQOL. It can be used with healthy children and those with both acute and chronic health conditions. Content. Assesses for 14 physical and psychosocial domains: general health perceptions, physical functioning, role/social physical functioning, bodily pain, role/social emotional functioning, role/social behavioral functioning, parent impact-time, parent impact-emotional, self-esteem, mental health, behavior, family activities, family cohesion, and change in health. Number of items. The child-report questionnaire (CHQCF87) consists of 87 items. The long parent-report questionnaire (CHQ-PF50) consists of 50 items, and the short parent-report questionnaire (CHQ-PF28) consists of 28 items. Response options/scale. The response options for the CHQ are ordinal scales that vary by the item. Each item consists of 4–6 response options. Additionally, each scale consists of varying numbers of items. Recall period for items. Varies by subscale. Most scales have a recall period of 4 weeks. The change in health subscale has a recall period of 1 year, and the global health, general health perception, and family cohesion subscales ask about the child’s health “in general.” Endorsements. No information. Examples of use. Apaz MT, Saad-Magalhaes C, Pistorio A, Ravelli A, de Oliveira Sato J, Marcantoni MB, et al, for the Paediatric Rheumatology International Trials Organisation. Health-related quality of life of patients with juvenile dermatomyositis: results from the Paediatric Rheumatology International Trials Organisation multinational quality of life cohort study. Arthritis Rheum 2009; 61:509–17. Brunner HI, Higgins GC, Wiers K, Lapidus SK, Olson JC, Onel K, et al. Health-related quality of life and its relationship to patient disease course in childhoodonset systemic lupus erythematosus. J Rheumatol 2009;36: 1536–45 (1). Gutierrez-Suarez R, Pistorio A, Cespedes Cruz A, Norambuena X, Flato B, Rumba I, et al. Health-related quality of life of patients with juvenile idiopathic arthritis coming from 3 different geographic areas: the PRINTO multinational quality of life cohort study. Rheumatology (Oxford) 2007;46:314–20 (2). Oliveira S, Ravelli A, Pistorio A, Castell E, Malattia C, Prieur AM, et al, for the Pediatric Rheumatology International Trials Organization (PRINTO). Proxy-reported healthrelated quality of life of patients with juvenile idiopathic arthritis: the Pediatric Rheumatology International Trials Organization multinational quality of life cohort study. Arthritis Rheum 2007;57:35–43 (3). Ruperto N, Buratti S, Duarte-Salazar C, Pistorio A, Reiff A, Bernstein B, et al. Health-related quality of life in juvenile-onset systemic lupus erythematosus and its relationship to disease activity and damage. Arthritis Rheum 2004; 51:458–64. Selvaag AM, Flato B, Lien G, Sorskaar D, Vinje O, Forre O. Measuring health status in early juvenile idiopathic arthritis: determinants and responsiveness of the Child Health Questionnaire. J Rheumatol 2003;30:1602–10 (4). Takken T, Elst E, Spermon N, Helders PJ, Prakken AB, van der Net J. The physiological and physical determinants of functional ability measures in children with juvenile dermatomyositis. J Rheumatol 2002;42:591–5. Stephanie E. Hullmann, MS, Jamie L. Ryan, MS, Rachelle R. Ramsey, MS, John M. Chaney, PhD, and Larry L. Mullins, PhD: Oklahoma State University, Stillwater. Address correspondence to Stephanie E. Hullmann, MS, Oklahoma State University, 116 North Murray Hall, Stillwater, OK 74078. E-mail: stephanie.hullmann@okstate.edu. Submitted for publication January 23, 2011; accepted in revised form May 10, 2011. Arthritis Care & Research Vol. 63, No. S11, November 2011, pp S420–S430 DOI 10.1002/acr.20637 © 2011, American College of Rheumatology