Exploring the experiences of people with aphasia following a stroke and their caregivers : a psychosocial approach to disability and social participation ; Explorer le vécu des personnes aphasiques à la suite d’un AVC et de leurs aidant.e.s : une approche psychosociale des situations de handicap et de participation sociale

Aphasia is a language disorder and results in 70% of cases from a stroke. This thesis focuses on the social construction of disability or social participation situations of people with aphasia following a stroke, using the Modèle de Développement Humain – Processus de Production du Handicap (MDH-PPH) model. First, the aim is to propose a methodology adapted to aphasic disorders. Secondly, the aim is to identify the psychosocial determinants of disability and social participation, with a particular focus on the social sharing of emotions and social representations of disability. The first part consists of an exploratory study in a hospital setting based on observations of the relationships between nurses/nursing assistant (CNA) and aphasic patients. The participative analysis (grounded theory) highlighted the major role of communication in establishing a care relationship and in achieving patient-centered care. The second part is composed of two studies. The first is based on life stories (n=13) and aims to retrace the trajectories of aphasic patients leading them to an association. The data were subjected to a thematic analysis of the trajectories. This analysis highlighted identity processes that could facilitate or hinder recourse. The association proves to be a place conducive to sharing emotions. The second study is composed of semi-directed dyadic interviews (n=6). A phenomenological interpretative analysis (IPA) revealed an isolation felt by the dyad due to a difficulty for their entourage to understand and adjust to the aphasia: the latter being an invisible disorder. ; L’aphasie est un trouble du langage qui résulte dans 70% des cas d’un Accident Vasculaire Cérébral (AVC). Cette thèse porte sur la construction sociale des situations de handicap ou de participation sociale des personnes aphasiques à la suite d’un AVC, en mobilisant le Modèle du Développement Humain – Processus de Production du Handicap (MDH-PPH). L’objectif est tout d’abord de proposer une méthodologie adaptée aux troubles aphasiques puis ...