Exploring experiential differences in everyday activities – A focused ethnographic study in the homes of people living with memory-led Alzheimer's disease and posterior cortical atrophy
In: Journal of Aging Studies , 69 , Article 101226. (2024, 2024
Online
academicJournal
Zugriff:
Background: Supporting ageing in place, quality of life and activity engagement are public health priorities for people living with dementia, but little is known about the needs and experiences of community-dwelling people with rarer forms of dementia with lesser known symptoms. Posterior cortical atrophy (PCA) is a rare form of dementia usually caused by Alzheimer's disease but which is characterised by diminished visual processing (rather than a dominant memory problem), which poses challenges for maintaining independence and accessing appropriate support. Methods: This study used a comparative qualitative design and focussed ethnographic methods to explore experiential differences in activity engagement for 10 people with the most common, memory-led presentation of Alzheimer's disease and 10 people with posterior cortical atrophy within their everyday home environments. Results: While the data collection revealed much rich variation in individual and contextual factors, some tentative high-level differences in the experiences of everyday activities could be drawn out, seemingly attributable to the different diagnoses' differing dominant symptoms. These included people with posterior cortical atrophy being less likely to use environmental cues to initiate activities, and more likely to withhold from asking for support because of preserved insight into the impact of this on carers. This lack of initiation of activities could be misinterpreted as apathy. People with posterior cortical atrophy also were discouraged from engaging in activities by disorientation within the home, and difficulties localising, identifying and manipulating objects. People with the more common, memory-led presentation of Alzheimer's disease exhibited more memory-based difficulties with engaging with activities such as forgetting planned activities, where to locate the items required for an activity and the steps involved. Despite these distinct symptom-led challenges, all participants and their family members demonstrated ...
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Exploring experiential differences in everyday activities – A focused ethnographic study in the homes of people living with memory-led Alzheimer's disease and posterior cortical atrophy
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Autor/in / Beteiligte Person: | Harding, E ; Sullivan, MP ; Camic, PM ; Yong, KXX ; Stott, J ; Crutch, SJ |
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Zeitschrift: | Journal of Aging Studies , 69 , Article 101226. (2024, 2024 |
Veröffentlichung: | Elsevier BV, 2024 |
Medientyp: | academicJournal |
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